Individuals sought for research study checking out the mindsets of grownups dealing with aniridia towards utilizing the web and social networks in relation to their condition.

We are searching for grownups (aged 18+) impacted by aniridia to participate in a research study which will speak with individuals with the goal of checking out how they utilize and feel about utilizing the web and social networks to gain access to info about aniridia and get in touch with others who share comparable experiences.

Taking part in this research study will include participating in one roughly 60 minute interview by means of Zoom or a phone call, or possibly face to face (range and accessibility allowing).

The interview will be structured utilizing open-ended concerns, permitting individuals the chance to explain their own ideas, experiences and viewpoints in information about web and social networks utilize associating with aniridia. The research study intends to enhance understanding of the inspirations that drive web and social networks usage and recognize any unmet requirements, supplying a basis with which to notify future service advancements.

For more information about the research study, you can check out a copy of the info sheet and permission kind in the following formats:

If you have any additional inquiries or want to offer as an individual, please call the primary scientist, Emily Sterling, MSc trainee at Cardiff University in Genetic and Genomic Counselling. This task is monitored by Teacher Marion McAllister, Program Director of the MSc in Hereditary and Genomic Counselling at Cardiff University Centre for Medical Education.

Emily Sterling’s e-mail address is [email protected]

This research study has actually been examined by and got a beneficial ethical viewpoint from Cardiff University’s Research study Ethics Committee.